Take the first step

Learn more about Menkes disease and become an advocate today

Resources available for physicians and healthcare professionals

National Institute of Neurological Disorders and Stroke logo
National Organization for Rare Disorders logo
Genetic and Rare Diseases Information Center logo

Learn how to become an advocate for Menkes disease

Advocate for ATP7A-linked disorders to be included in standardized newborn screening panels by contacting your local representative or starting a petition for your state. Find your local representative at everylifefoundation.org or at congress.gov today.