Take the first step

Learn more about Menkes disease and become an advocate today

Resources available for physicians and healthcare professionals

• National Institute of Neurological Disorders and Stroke
• National Organization for Rare Disorders
• Genetic and Rare Diseases Information Center

Learn how to become an advocate for Menkes disease

Advocate for ATP7A-linked disorders to be included in standardized newborn screening panels by contacting your local representative or starting a petition for your state. Find your local representative at everylifefoundation.org or at congress.gov today.